I know this is totally off-topic for a mobile news site, but it's for a good cause so please read on if you have a minute...
PNH is a rare and serious blood condition. There is a new drug called Soliris which helps manage and reduce many of the symptoms PNH sufferers have and greatly improves their quality of life.
However, it is very expensive and patients in the United Kingdom are being told that this drug and specialist clinics may not be funded by the NHS for the small number of patients who need it because of the high cost of the drug. The Health Minister, Dawn Primarolo, is currently considering offering the drug to all PNH patients in the UK and is on the verge of a decision.
If you believe that this drug should be made available to all PNH patients via the NHS then please sign the following online petition (you can do so anonymously if you wish):
http://www.gopetition.co.uk/petitions/fund-the-drug-soliris.html
Extra signatures would be very much appreciated. Thanks!
Incase you'd like to learn more here's a link to a PNH patient�s personal story: http://pnhlondon.wordpress.com/